day 165. The past week or so has been a roller coaster. Jackson was moved back to the PCU about two and a half weeks ago, and has been doing great. His medication wean had been steady, his feeds weren’t increasing but were manageable, and we were on our course toward home. Or so we … More On our terms.
It’s often hard to put into words what our week looks like. The ups and downs and in-betweens seem to happen very quickly, and I’m guilty of sometimes forgetting about one before moving on to the other. I decided that the best way to show this is through photos – nothing special or professional or … More a week in pictures.
day 133. Zach and I have a running joke. The minute you say ‘we’re almost done’, you’ve officially jinxed yourself. It doesn’t matter what you’re doing – ‘we’re almost done’ is a nice way of buying yourself more time, more stress, more work. Last week, Jackson was moved from the CVICU to the Progressive Care … More super week.
day 125. Today is a big day. After almost 18 weeks in the CVICU, Jackson has been officially cleared to move to the progressive care unit, or the PCU. Orders have been put in, teams have been notified; now all we have to do is wait. The progressive care unit is definitely a step in … More making moves.
There is apparently a world in NICU they call ‘feeders and growers’. A place where they send babies who were born a bit too small or need a little extra help getting home. We didn’t go to that world. We went to a world of beeping alarms and red carts. Of vent tubes and intubation … More celebrate the good.
I have a confession to make. A few weeks ago, I shared with you that Zach and I were starting a Whole30, even though our life was basically in shambles at this point. Great shambles; adorable, baby shambles. But, shambles none the less. It seemed like a good time to start, when life was at … More confessions.
day 116. This past week held a lot of big changes for Jackson. To say we were surprised by the outcome this week would be wrong – this is something we have toyed with since only minutes after he was born. But, I would be lying to say that we were hoping for a different … More trach time.
My husband and I just started a Whole30. Seems like a sound plan, right? I mean, it’s not like we have much else going on. Son’s in the ICU? Check. Potential tracheostomy and expected extubation? Check. Carefully balancing work and home life while simultaneously completing a masters in nutrition? Check, check and check. Zach and … More why i’m doing a whole30 while my life is in shambles.
I want my pre-baby body back. There. I said it. Feel free to judge me. Then hear me out. Prior to having Jackson, my husband owned a gym. I taught a dozen classes a week, worked out on my own, and spent more time in the gym than I did at my own house. Weekdays … More i’m trying to get my pre-baby body back and that’s okay.
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